Getting an autism diagnosis and finding the right support can be a challenging journey for any family. But for those from migrant backgrounds, there can be extra layers of complexity — unfamiliar systems, language barriers, stigma, and isolation.
To better understand these experiences, a team of researchers (including several of our own staff) partnered with La Trobe University to conduct a three-part study focused on Chinese and South Asian families of autistic children, as well as the professionals who work with them. The final paper in the series has just been published — and the insights are too important not to share.
What the Research Found
“What is early intervention? I had no idea” – Chinese Parents' Experiences
This study explored how Chinese families experience the autism diagnosis and early intervention process in Australia. Many parents shared how overwhelming and isolating it felt, particularly when they weren’t familiar with the term ‘early intervention’ or the supports available.
They also described:
- Language and system navigation barriers
- A lack of culturally specific services
- Stigma around autism in their communities
Yet despite these challenges, families leaned on informal networks and showed a deep commitment to supporting their children.
“We go through trauma” – South Asian Parents' Experiences
The second paper captured the voices of South Asian parents — many of whom described feeling alone in their journey. With few community-specific supports available, they often had to piece together information on their own.
Key themes included:
- Delays in diagnosis and access to therapy
- Confusion around funding systems like the NDIS
- Emotional toll and community judgment
Despite all this, parents were proactive and persistent in seeking support, often preferring structured, goal-based interventions.
“Individualisation is key” – Insights from Professionals
The final paper focused on the experiences of early intervention professionals who work with families from Chinese and South Asian backgrounds.
They spoke of:
- The challenge of building a shared understanding of autism
- Tension between professional recommendations and family expectations
- The impact of stigma on family wellbeing
Most importantly, professionals emphasised that there’s no one-size-fits-all approach. Taking time to understand each family’s values, culture, and goals was essential to building trust and providing effective support.
Why This Matters
These studies reflect what we see in our everyday work: that culturally and linguistically diverse families face unique, and often hidden, barriers when navigating autism supports in Australia.
By listening deeply to the voices of families and professionals, we can better understand what’s working — and what’s not. Most importantly, we can take meaningful steps to create more inclusive, affirming and accessible supports for all families.
What’s Next?
At L4Life, this research is already informing how we engage with CALD families in our early intervention programs. It reminds us of the value of slowing down, asking the right questions, and working with families — not just for them.
We thank our research partners at La Trobe University, the families who shared their stories, and the professionals who contributed their insights.
Explore the published articles:
